Wednesday, January 19, 2011

Scope 5

Once again things didn't go according to plan.  I don't know why I keep setting expectations for these things anyway.  The EoE is still there.  There were clear visible signs in the photos and Super EoE Doc informed us he's very well versed in judging the photos and well, the EoE's still there and active.  Of course the official biopsy results will be back some time next week but it doesn't really matter. 

The polyp is still there but on a bright note, today's physician claimed it is not a polyp but rather a "bump", which is great since now there are more of them.  He claims they are associated with EoE and are further evidence that the allergy cells are still alive and thriving.  He took a sample of the biggest bump just to be sure. 

To add to the excitement, Roo is once again experiencing croup following the breathing tube and anesthesia.  He seems to have a reactive airway which means we got to spend a couple of extra hours in recovery while he coughed up blood, received nebulizer treatments, and got some steroids via IV.  We're keeping our fingers crossed that it helps prevent another ER visit tonight. 

We're crushed.  Had big hopes for this one.  He's off everything he was off when he got a clean scope over a year ago so we're back to square one.  We're still a step away from tube feedings but this is a dangerous path we're on.  I fear we're just really getting started.


  1. I'm so sorry, this is really unexpected and so frustrating :( Rough day. Give Rohan big hugs from us, I hope he's sleeping now and feeling better. Same goes for the rest of you too. Talk to you soon...

  2. ARHGGGGG (did I spell that right?). Things will get better, maybe just not in the time frame you are hoping for. He is doing great in so many different ways, his esophagus will catch up soon!

    Kristen Lee

  3. Thanks, Ladies. I'm still feeling a little like I got kicked in the stomach but you're right, Kristen, he really IS doing great in many ways. I need to remember that.